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Dear Diary…

The year 2012 has ended and a brand new year has begun. With the beginning of a new year we reflect on the past and look forward to the future. Something that helps me reflect is my personal journal. I...

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Back To Square One

So as I mentioned in my last post, my diagnosis was recently amended from MS to NMO. (Neuromyelitis Optica) In many ways, I feel like I’m right back at the beginning. A whole new diagnosis means a...

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New Directions… discussion welcome!

Changes. It is not just a kick ass Bowie song. Hi everyone my name is Amanda and this is what is left of my blog… I have been struggling to find something to write. I love this blog and the site and as...

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Hey! Come and join us at someonelikeme and the Youth Advisory Group!

My name is Amanda…and I have MS … I wasn’t always ok with this fact, but after a year of adjusting I decided to accept that my disease is out of my control but what I do about it is in my control....

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Rebellious

Since this is my first post on here, I guess I’ll start off with a bit of an introduction on myself and how I ended up becoming a blogger for this website. I’m 19 years old, a Torontonian at heart, and...

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So the journey begins… my relationship with Multiple Sclerosis

I always knew that one day I would take care of my parents.  I knew I was part of the ‘sandwich generation’ > folks who would, at some point, take care of both their own children and their parents...

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Grace

I had a nickname growing up. It was Grace, because I didn’t have any. I was uncoordinated from the get go and it only got worse. My MS certainly hasn’t helped things. I have yet to find a surface I...

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There Is No Limit

My name is Owen and I have MS. You are not alone or even limited as to what you can do. I have done stuff that would put most people to shame. I went sky diving. It was mind blowing and so much fun –...

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A slap in the face ??? … or 2?

 Going on 9 years with this stupid illness and I always manage to get a violent slap in the face to bring me back to my senses.  On Jan 10th I went to sleep eating way too many cookies that I had just...

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frustration

It’s quite marvelous how easily my moods can swing from one continuum to the next, like my MS has gotten herself a rope and is playing monkey games with my head, swinging from one nerve cell to the...

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THEN MY BROTHER DIED

The difficult parts of life are like a fight. The lifetime boxing match we all go through. The first 24 years of my life were a challenge but it didn’t ever feel like a fight. Then MS came along and it...

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Skiing Is Believing: Redefining What’s Possible

On Saturday, March 16th, 2013, I spent the entire day at Whistler Olympic Park, which was home to the Olympic and Paralympic Cross Country Skiing and Biathalon events. My friend Andrea asked me to come...

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Love, Life, and MS

Love, life, AND MS? This past year has taught me that they can in fact coexist. I’m Maria, I’m 20 years old, and I have MS. I was diagnosed at the age of fifteen, and hadn’t quite recovered from the...

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MS Summer Camp and volunteer peer support leader opportunity!

The MS Society runs a free summer camp for kids living with MS ages 8-21. There are still spots available! The camp and travel are free for Canadian campers. We also have spots for campers outside...

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My new Cure for attacks – MEXICO!!!!

I had always heard “I feel so much better in the heat” from other MS patients, but never me – I hated the heat. My involvement with outside sports decreased, time spent laying in the sun vanished, my...

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Mommy, my hero

This is about a woman who I live for. The one person that keeps me grounded. She is the one that reminds me to be the best that I can be. She has a story that is not unique. Being the youngest and born...

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Travels with Team ‘Us’

I love to travel – apparently no one else in my family does – but I’m determined that this year we’ll take a family vacation.  My oldest is 6 years old and we’ve yet to take a vacation as a family. I...

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Explaining M.S.

At times I find it difficult to explain what MS is, its impact on my life, symptoms… Friends are always asking about how MS affects me, and are confused when I say things like “I’m having troubles...

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Hockey

It’s been awhile since I’ve written for the blog. This post is about my daughter playing hockey. We live in a small community in south western Ontario and hockey is a big deal here. Most of the kids...

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World MS Day – May 29, 2013

For World MS Day, the MS Society’s Youth Advisory Group wanted to profile a young person with MS! Meet Amanda Piron Age: 22            Home City: Aurora, Ontario Years with MS: 6 years Amanda is...

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